A Thibodaux-area teen with special needs sees wide variety of specialists at Our Lady of the Lake Children’s Health.
For 15 years, Casey Henry of Schriever, a small community nestled between Thibodaux and Houma, has bounced between hospitals and clinics to cobble together care for daughter, Katie.
Katie was born with tuberous sclerosis, a genetic disorder that can cause developmental delay, seizures, tumors and other abnormalities in organs. Caring for her and finding specialists has been a full-time job for Casey, a single mother of three who had to withdraw from college when Katie was born to provide around-the-clock care.
“I’m a research fanatic; I always read everything I can about her condition and treatments,” said Casey. By the time Katie was 7 years old, Katie was suffering 20 seizures a day.
In addition to various providers in New Orleans, Katie began seeing specialists in Alabama when she joined a clinical drug study.
Recently, after Katie’s pediatric neurosurgeon, Lori McBride, MD, joined Our Lady of the Lake Children’s Health, Katie reached a turning point in care.
“Casey found out I was here at Our Lady of the Lake and brought Katie to see me in February,” Dr. McBride recalled. “Casey mentioned how hard it is taking Katie all over the place to get help for all her issues.”
Construction on the freestanding children’s hospital in Baton Rouge will be complete in 2019, but Our Lady of the Lake Children’s Health is already providing specialty care to more children from all over Louisiana thanks to our growing team of physician specialists and our expanding network of satellite clinics.
Ideal care for children with complicated conditions like Katie’s is a team approach, Dr. McBride said, where multiple physicians working together can communicate about the patient.
To help with development, Katie now goes to Our Lady of the Lake Children’s Health Pediatric Development and Therapy Center. There, Steven Felix, MD, a specialist in developmental behavior, and psychologist Melissa Gonzalez, Ph.D., who specializes in autism spectrum and feeding disorders, head up a team of clinicians and specialists.
“We started talking and realized that Our Lady of the Lake Children’s Health has many services Katie needs,” Dr. McBride said. “We referred her to Patrice Tyson, MD, for her kidney and liver masses.” In addition, Katie sees Lester Hixon, MD, and Lauren Haddad, MD, in cardiology for acute cardiac arrhythmia.
“I can’t imagine a better demonstration of how Our Lady of the Lake Children’s Health takes care of medically complex kids,” Dr. McBride said.
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